2 weeks ago, I felt normal(ish) for the first time in months.
I had hope. I felt relief.
It all came crashing down.
I have a rash all over my body again (and nausea, vomiting, light headedness and digestive issues). The ER doctor didn't think it is a relapse of DRESS Syndrome, but thinks it may be a viral infection. I have to wait for antibody test results to come back.
My liver enzymes are up, after being steadily in the ideal zone for over a month. This means I had to go back on a higher dose of prednisone. The ER doctor only bumped me up to 10mg/day (already my blood sugar is pissed off at me again), I will know once I see the dermatologist if I have to go up more.
The 3 months until I'm off prednisone is slipping away... so it my ability to remain sane.
You can only remain strong for so long. I keep reminding myself that last January, when I had my really bad MS relapse, I didn't think I could deal with it... but I did. In July when I developed DRESS Syndrome, I didn't think I could deal with it... but I did. When I got steroid induced diabetes, wild mood swings, a moon face, a hump on my back, I didn't think I could deal with it... but I did.
So why don't I think I can deal with this much longer?
With MS I get breaks. Things go back to not being so horrible. Sometimes not as good as they were before, but a break from the mental and physical exhaustion that comes with a relapse. I don't get that break with this... I get gradual, slow progressions of kind of, sort of being a bit better... and then it all gets screwed up some how.
I just want a break from everything, before I break.